IC Free Now: Hormone Replacement Treatment

I went to see a urogynecologist recommended on the Interstitial Cystitis Network website, Dr. Allan Klapper, the Chief of Gynecology and Obstetrics at New York Downtown Hospital. I wanted to see what he would recommend for my bladder symptoms. I was very afraid that he would examine my bladder visually by way of the urethra, but he didn't. He did a manual examination vaginally, and confirmed my report that my bladder was sensitive.

He prescribed Estrace, 1mg every other day taken vaginally. The idea seems to be that the estrogen will cause a reduction in bladder sensitivity. Since my symptoms began with perimenopause, I feel hopeful. I have been taking the Estrace for about two weeks now. So far, I have not noticed a reduction in symptoms, but he said that it would take a month. I will keep you posted!

Mission Statement

Dear Courageous Spirit,
Our mission is to end the pain of Interstitial Cystitis for every person who is afflicted with this disease.

The IC Sisters joined together to reduce our pain, to cope with our disease, and to increase our hope of living pain free. Our hearts reach out to every individual who is suffering as we have suffered. We want your pain to stop, too. We will share what we have learned in our 28 years of collective experience with IC. And we will provide a supportive environment while you discover what works for you.

Love, The IC Sisters

Meet the IC Sisters

Sister 1

I have been suffering with Interstitial Cystitis symptoms for about 22 years. I am currently 44 years old. In the eighties when my symptoms first started emerging I spent years seeing specialists, having tests done, being humiliated in a variety of medical settings and usually leaving the office in more pain than I was in when I came in. You might know some of these tests. Looking inside the bladder is a personal non-favorite. It seems I also remember being x-rayed while peeing into a bucket in a room full of technicians and interns. After five or so years with no answers, no diagnosis and no relief, I gave up. About 12 years later, I tried again and finally got my diagnosis. At this time, the options for treatment were dmso and Elmiron, I have done neither. I did, however, learn about the benefits of an acid-free diet, and I finally had a word to use in the world to amass more information. I am not pain free. I am not close to pain free. I have not had a remission in 15 years. I am, however, more in control of how I feel, and I am learning every day. The things I have learned have kept me sane and hopeful and I want to share them.

Sister 2

My interstitial cystitis symptoms began with peri-menopause. Even though I had a sister with IC, it took years(!) to figure out what was happening. I went to my primary care physician twice, certain that I had a urinary tract infection, but my urine samples came back normal. Then I went complaining of pelvic floor pain, but nothing was discovered to be wrong. What the hell?! Finally, I realized I had the same problem as my sister, and she was able to help me manage my symptoms. She helped me modify my diet so I experienced less pain. She also helped me alkalize my body and reduce sugar in my diet that could contribute to yeast build up in many of the body's systems.

Sister 1 has been an amazing resource for coping with this painful disease, and I know she can help you, too. Also, if you don't have your own Sister 1, I would suggest joining a support group, or starting one. Let's join together and rid the world of this painful disease!

How to Read Our Recipes

Since controlling our diets depends on knowing what the heck we are eating, you will find a lot of "back to basics" ideas among our recipes. What the heck is in microwave popcorn? What the heck is in a spice pack? What the heck is that list of chemicals as long as my arm on my bread bag? Most of it will hurt us. Here are the recipes we have tried that have put us back on the road to feeling normal.

Ingredients that appear in pink are "bladder soothing." Ingredients that appear in green are "bladder safe." Ingredients that appear in orange are "bladder safe for most," and should be considered "maybes." These designations come from the 2009 IC/PBS Food List published by The Interstitial Cystitis Network.

Hormone Replacement Treatment

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